I saw the consultant on Wednesday for the biopsy results and it's confirmed as malignant mesothelioma. No shock to me as my body had already told me that and I'd come to terms with it. It was harder for Karen who'd decided to stay in denial (which is optimist speak for sticking your head in the sand

) She hadn't really considered the bad option so the specialist nurse spent most of the time answering her questions and talking us through the CT scan pictures and stuff.
Because this particular cancer is very personalised (custom designed for me!) the consultant couldn't even give a guesstimate and said I could pick my own number between 6 months and 10 years. She had one patient who lasted 10 years despite it being clinically impossible

If my rate of deterioration stays the same my body tells me I'm looking at the shorter end.
They gave me some good advice about pain management and it was encouraging to hear that modern pain management means that it can be increased indefinitely and tailored precisely to the patient. My case will be examined at the regional mesothelioma panel in Bristol who may give extra advice to the team at Bath. Then I'm being referred to Oncology who may or may not recommend chemo or radiotherapy options to ease the symptoms. I've also been referred to the local hospice team and they've already contacted me and will be checking up on me regularly and will become my first contact for symptom control and care.
So the incredible care I've been receiving is continuing and everybody has been so kind and genuinely concerned and encouraging.
I handed in my notice yesterday so I'm a month away from retirement. I won't be sorry to hand back all my railway paraphernalia. It was fun while I was still fit but the last few months were getting a bit tedious after I'd passed my 50 year working landmark and felt that it was time to stop looking after unappreciative people
Right, I've got an empty calendar for a couple of days so I'm putting my feet up. I'm starting with a bacon and egg sandwich. Anybody else?
Ian
