Another One Bites the Dust!

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speedbird591
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Re: Another One Bites the Dust!

Post by speedbird591 »

I'll slip in another update for those who are following the saga. Last week, I mentioned the Gabapentin tablets that I'd been prescribed to fight the nerve pain that I was getting and I also mentioned that I'd had to go straight to the maximum dose. They brought me relief for a few days but then my least favourite pain came back with a vengeance. This is the one like hives that encompasses my right breast down into the tissue and then runs in a band under my arm and over my right ribcage. It feels hyper sensitive to touch as though the skin and tissue has been badly sunburned. The only respite was to sit still with no shirt on. As it was late in the week I suffered it through the weekend and called Simon the hospice nurse first thing on Monday morning. He was great. He consulted the cancer specialist doctors and the physio at the hospice and by Monday afternoon I had been fitted with a tens machine and got a new prescription for steroids.

The tens machine sends an electric current into the path of the nerves running from the source of the pain to the brain with the intention of getting the brain to focus on the new pain instead of the old one. It does bring relief but temporarily and it's a bit of faffing about as the electrodes have to go on your back and in this hot weather the gel's got sweaty and they keep moving around.

The steroids, however, hit the sweet spot and although the sensitivity is still there it's barely noticeable. So now I'm up to 14 tablets a day plus the machine and I've had to create a chart on my laptop so I can keep track of when I take them all. Of course they all have different possible side effects but the steroids are my favourites. The best (and fairly common) are feelings of mania and seeing things that aren't there. If, after taking them for three weeks, I stop without a slowdown routine, my blood pressure will drop dramatically and I may die. Still, if they stop that pain, I'll happily see fairies at the bottom of the garden (Actually I think I did, yesterday :worried: ).

So I had a happy few days as the steroids are also 'uppers' and improve your feeling of well-being and energy. But yesterday a new pain developed lower down in my back - like a constant muscle pain - and that's kept me awake for two nights. Hopefully it will go away again but Simon's coming round on Monday so we'll see what he says. The only one of my tablets I can increase is the steroids so it may mean something else. But it's a bit worrying that I'm having to increase painkillers so quickly. I worry that if the next level is morphine based I may have to give up driving already which would be too soon.

Speaking of which, I've traded my Mazda for a little Toyota Yaris so that Tom, who fresh back from Uni is making another attempt at passing his test, can use it to drive me about. Then when I have to give up I can give it to him - and hopefully he will still be willing to drive me about if I can find him!

Next week we'll see what Simon says about my new pain - but hopefully it will have moved on by then.

Ian :)

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Re: Another One Bites the Dust!

Post by tonymadge »

Hi Ian, hope Simon can give you something else to get rid of the pain, steroids are very good but as you say you have to come off them slowly. I bet with all them tablets your taking you rattle when you walk :)
Thanks for the update its good to know how your doing
Tony
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Tomliner
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Re: Another One Bites the Dust!

Post by Tomliner »

Hi Ian,thanks for the update.Like everyone else on this forum,I wish there was something I could do to ease your pain.Platitudes don't help so I'll not insult your intelligence by resorting to them.Very best wishes EricT. :)
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speedbird591
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Re: Another One Bites the Dust!

Post by speedbird591 »

Tomliner wrote:Platitudes don't help ...
Oh but they do! I could watch them swimming around all day with their cute little duck bills :)

Thanks for the support, guys. Despite the variety of pains that come and go, I'm actually in very good spirits at the moment. Possibly a steroid side effect :doh: The memsahib popped in a few little moans recently and I've reacted. I've had some ladies in to do a garden makeover, a man in to do an oven clean and I'm having the carpets done next week. I'm husband of the year and I haven't had to lift a finger except to make phone calls!

Ian :)

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Re: Another One Bites the Dust!

Post by airboatr »

speedbird591 wrote: Tom, who fresh back from Uni is making another attempt at passing his test, can use it to drive me about.



Ian :)

Soooo.. you've decided to go by heart attack then.


:doh: good heavens




btw.. I'm having a bobblehead made of you which I will glue to my bicycle handlebars so I can take you for a ride... hang on!. cows at twelve o' clock! :-O

:wasntme:
;)
Joe


Keeping you in thought, Ian, praying the pain will diminish.

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speedbird591
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Re: Another One Bites the Dust!

Post by speedbird591 »

I've had quite a good week, this week. Been out and about and stayed over in Southampton for cyberbrat's graduation. I was really concerned I was going to miss that because of the illness but with the pain more manageable and predictable I'm largely able to work round it. Had a brilliant day, felt very proud and cried. I cry at everything nowadays - but not in a bad way. My emotions are closer to the surface - must be the drugs. Must get more!!

But what I wanted to highlight this week is the astounding generosity of (some) human beings.

I retired a week or two back but due to the circumstances I didn't have a 'do' or a card and asked them not to do a collection or presentation or anything for me. But the small management team at the depot suggested a collection for charity rather than a carriage clock or greenhouse or whatever and I thought that was a nice idea. I chose the local Hospice who are looking after me as it is most appropriate.

It's not a big depot and I'm not close to many of the guys there - probably half a dozen that I've socialised with - otherwise just pleasant banter. A retirement collection usually comes to £250-300 for a long-serving driver.

I went in yesterday as they'd closed the collection and the boss wanted to drive me down to the charity shop to pay it in. When I saw the envelope absolutely stuffed with £20 notes I'm embarrassed to say that I burst into tears. And when they said it contained £1020 I couldn't even speak for five minutes. I was totally humbled and helpless and they said it just went to show what high regard I was held in at work. I had no idea. I thought they hated me as much as I hated them :lol:

But seriously, it was by far the biggest ever collection at the depot and also the biggest donation ever received at the charity shop. By registering with Gift Aid, the tax man will also increase the donation by a third.

So there's a good news story. And an admission that people can be so kind and thoughtful that they can make a grown man cry.

Ian :)

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Re: Another One Bites the Dust!

Post by DaveB »

Hi Ian :hello:

It's not usual for you to be speechless.. me neither for that matter but given the same circumstances.. I'd have been equally moved. I hope you've been to each and every one of them and apologised for all those bad thoughts you've been harbouring over the years :lol:

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Re: Another One Bites the Dust!

Post by dodger »

Hi Ian,

Well that last post moved me to a tear in the eyes,

I know i'm a Grumpy Old B ##### even my son number two always calls me Grumps [not Dad ] but i hope you continue Ian to soldier on mate, nice you got down to Southampton and what a great gesture from your works it just shows what they all thought of you,

Best Wishes,

Roger.
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Tomliner
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Re: Another One Bites the Dust!

Post by Tomliner »

Ian, what a great big softy you are! A touching story really.I hope you really enjoyed your time in Southampton.
When I retired my colleagues had a generous whip round for me.I thought it was because I was popular but in reality they were just glad to see me go! :agree: Best wishes EricT
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Re: Another One Bites the Dust!

Post by Filonian »

Ian, I am pleased you were able to attend the Graduation Ceremony in relative comfort. I am sure it meant as much to you as well as your offspring.

I have attended two, a B Sc and Masters for our daughter and it is certainly a proud moment for all concerned.

The magnificent gesture from your erstwhile work colleagues is something to be marveled at in this day and age. No shame in showing emotion.

My own experience was rather different, I had to take early retirement in 2000 and after 15 years service was rewarded with three bits of paper - two relating to tax and the other the first pension advice note.

It's nice to hear that your pain management is having a beneficial effet.


Graham
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